Can’t even have fun anymore.

Can’t even have fun anymore.

I will preface this by saying I have been diagnosed with hEDS for a year and have a difficult time pacing myself and accepting that I can’t do what I used to.

I live in east USA and as some may know, a huge snowstorm came through recently. This is the first storm with actual snow on the ground in 7 inches. I don’t remember the last one.

Because I knew this wouldn’t happen again for a long time (4 inches!) I went out and sledded, built a snowman, and had a snowball fight with some neighbor’s kids. I had a blast.

And today I can’t move. I just had fun for ONE day and now I’m in immense pains (amongst other symptoms, namely POTS) and can’t get out of bed.

This is stupid. I hate this. I hate that I can’t make the most of every day. I hate that I can’t enjoy the first winter weather in my memory. I hate that if I choose to have fun, I’m out of commission for DAYS.

this sucks.

Thank you for listening to my rant.

I added my snow view for your time.